Helen Keller National Center in Seattle, WA

Volume #7

Feb. 2008

NW Connection

Your Eyes and Ears in the Northwest

Happy New Year Everyone!

Hello Everyone!

          2007 has been a good year and I would like to share some of the highlights with you.

          In June, HKNC in collaboration with the Oregon Commission for the Blind’s Older Blind Program had the 1st ever “Confident Living Program on the Road” event at Oral Hull retreat in Sandy, Oregon.  Nine participants from California, Idaho, Indiana, Oregon and Washington had a fun learning experience for one week.  All the participants were over the age of 55.  The event was so successful that other states want to replicate it including Idaho.

          Last October, I met with Margi Morgan, President of the Oregon Association for the Deaf.  As a result of this meeting, a workshop on deaf-blindness will be presented early 2008.  One of the goals of the workshop is to provide awareness and knowledge of individuals who are deaf-blind and to recruit volunteers for a future SSP program.

          The Independent Living Committee of which I am participating on was successful in getting over four (4) recommendations into the State Independent Living Council (SILC) State Plan for the next five (5) years.  These four (4) recommendations are geared toward improving communication access for individuals who are Deaf, Deaf-Blind or Hard of Hearing.  We are now meeting with the director of SILC, Robert Honan, to discuss plans for implementing these recommendations.

          Taryn and I look forward to the coming months of 2008 and to continue to serve you in various capacities.

 

HKNC GOAL

          This newsletter is for the deaf-blind people of the Northwest and the people who live with them, work with them and socialize with them. The Helen Keller National Center’s regional offices are specifically for you.  They are resource centers from which you can learn where to find what you need.  The regional representative is a consultant as well as a link to existing services and resources and an advocate for people who are deaf-blind, their families, friends, and co-workers.

          Your Regional Representative is Dorothy Walt, 206-324-1133 TTY/Video Phone.  For voice callers, call 711, and then give the operator Dorothy’s number.  Dorothy’s CapTel number is 206-720-4642 (accessed by the toll free number of 1-888-801-7210). Email: nwhknc@juno.com or FAX 206-324-9159.

          Address is: Helen Keller National Center; NW Region; 1620 18th Avenue, #201; Seattle, WA  98122

 

SOMETHING FOR NOTHING
          ReadThisToMe is a FREE reading service for people who are blind. All the person needs is a phone line and a fax machine. Here’s how it works: You can fax any document to a volunteer - whether it be a handwritten letter, a recipe, a can label, a multi-page magazine article - anything that can be faxed. The volunteer then calls you back and reads the document. That’s it! The service is available throughout the U.S. and is absolutely free (although donations are gladly accepted.)To learn more about this service go to their website at http://www.ReadThisToMe.org.  The audio version of the website is 877-333-8847.

 

LOW VISION BLACKBERRY OPTION FROM BAPIN (HKNC TECHNOLOGY DEPARTMENT

          The Blackberry 8800 series is the latest model and the screen size is no bigger than 4 inches. You can enlarge the font up to 14PT and make it bold. Alternatively, you can purchase a mobile phone/PDA running under Windows Mobile and purchase a screen magnification program. There are two known screen magnification programs for mobile phones/PDAs: One is called Mobile Magnifier from Code Factory (www.codefactory.es) and the other is called Zooms from Nuance (www.nuance.com/zooms)

 

SEABECK CAMP

          Here are the dates for the Seabeck Camp for 2008 so you can plan to attend!  They are: Sunday, August 24th through Saturday, August 30, 2008.  Did you know this with be their 30th year?!?

 

FALLS AND PREVENTION GUIDELINES**

          It is important to be cautious and aware of risk factors for falls.  Problems can arise when caution leads to fear.  Fear of falling causes many older adults to limit their activities — thereby becoming inactive and often more isolated.  This is especially true if the person has fallen before.

          If you avoid staying active because you’re afraid of falling, talk to your doctor.  He or she can recommend a carefully monitored exercise program that’s right for you or refer you to a physical therapist who can help design a safe exercise program.

          Here are four important things to remember if you do fall.  1. Try to remain calm and check yourself for injuries; 2. If you think you are injured and someone is nearby, call for help.  3. If no one is nearby, try to get up or crawl to a TTY or telephone to call for help.  4.  If you cannot get up, try to keep warm.  Pull any nearby rugs, coats, or blankets over and under you, if possible.

          There are several ways to get up from a fall, which method is best for you will depend on your health and your injuries.  Here are three (3) possible ways to get up from a fall.  1. Roll and Crawl: Roll onto your stomach, get up on all fours, crawl to a nearby piece of furniture, place your hands on it, and bring one foot forward — putting it flat on the floor — and stand up.  2. Shuffle.  If painful knees prevent you from crawling, shuffle on your bottom to a nearby piece of furniture, pull yourself onto your knees, and stand up.  3. Using Stairs: Shuffle on your bottom to the stairs, then gradually move up or down one step at a time until you reach a height that makes it possible for you to stand.  If you get up, take a few moments to recover and then call for help.

          Please try to practice these techniques before you need them, so that you can be prepared.  You can also safeguard yourself by doing a home safety check, placing a telephone on a low stool or shelf you can reach from the floor, and arranging for someone to call or check in on you daily.

 

CORDLESS PHONES TO BE HEARING AID COMPATIBLE

          Wonderful news for those who use cordless phones.  Several telephone manufacturers have agreed to make ALL their cordless phones hearing aid compatible!

          The Telecommunications Industry Association (TIA) and the Hearing Loss Association of America (HLAA) announced that Panasonic, Uniden, Thompson, and V-Tech will have 100% of their new cordless telephones comply with the TIA-1083 interference standard. This standard will curtail the interference experienced by cordless phone users with hearing aids and cochlear implants. These manufacturers have indicated phased-in commitments to 100% compliance, with most achieving it for new designs in 2008 and all expecting to comply by the beginning of 2010.

 

SIGN ME UP
          Every time the National Braille Press puts out a new product they send a message to people who have signed up for their email list.  If you would like to be put on this list, call their customer service department at 800-548-7323 or email orders@nbp.org and say “Sign me up for elist!”  The list is NOT shared with anyone else.

 

HKNC'S CONFIDENT LIVING PROGRAM FOR SENIOR ADULTS

          This year the Confident Living Program for Senior Adults who are hard of hearing and blind or visually impaired, is scheduled for May 7-14, 2008 at HKNC Headquarters.  The program has been restructured to run one week instead of two.  This year the program will begin on Wednesday and end the following Wednesday.  We are hoping the one-week program will be more affordable consumers and sponsors.  The cost of the program is $800.

          There is also a possibility of a Confident Living Program for Senior Adults who use sign language and are blind or visually impaired to be offered in 2008 but the dates have not yet been announced.

          If you have any questions or would like an application for either of these programs; please contact Dorothy Walt, your HKNC regional representative at nwhknc@juno.com.

 

NEW LIST SERV

          Former HKNC student, Addison Gethers, has started a new listserv called Deaf-Blind Inspirational Life Group.  Here is the info if anyone wants to join: http://groups.google.com/group/DBILG/about?hl=en

 

WHO’S BEHIND THE WHEEL?

          Here is a link to the web site that lists the minimum vision requirements for driving in each state.  It is a doctor’s web site and has lots of good information for people with low vision on the Home Page.  http://www.lowvisioncare.com/visionlaws.htm

 

PREVENT CARBON MONOXIDE POISIONING!

          Carbon monoxide is a poisonous gas that cannot be seen or smelled and can kill a person in minutes.  Carbon monoxide is produced whenever any fuel such as gas, oil, kerosene, wood or charcoal is burned.  Once inhaled, carbon monoxide can also cause permanent brain damage.

          Prevent carbon monoxide poisoning by NEVER using the following inside your home or garage: a generator, camp stoves, charcoal stoves, charcoal in the fireplace, gasoline powered equipment, kerosene heater, etc.  You also need to be careful about idling your car in the garage even when the garage door is open.  Be safe!  If you are in doubt, DON’T!

          Hundreds of people die accidentally every year from carbon monoxide poisoning caused by appliances that are not used properly or that are malfunctioning.  Carbon monoxide can build up so quickly that victims are overcome by the fumes before they can get help.

          If you suspect someone has been poisoned by carbon monoxide move the person immediately to a place with fresh air and then take them to an emergency room and tell the staff you suspect carbon monoxide poisoning.

 

MY E.T. / BY JIM BROWN

          My E.T. is definitely NOT extra terrestrial.  It rides on three wheels and is firmly held to earth by my 175 lbs.  It is an electronic tricycle that was especially assembled with what I thought would best serve my needs.  It is a heavy duty tricycle with two front wheels made in Australia and has a special two wheeled geared peddle crank for hill climbing, a wind and rain covering over my forward stretched legs, an under seat “glove box”, a broad semi reclining seat only 12” above ground for comfort and heads up viewing, under seat steering so my shoulders are in a natural restful position, a trunk bag on top of a rear rack to carry personal possessions, and a wire basket on either side of the rear rack to carry groceries.  I have also added an electric motor to the rear drive wheel, a 36 volt Lithium Ion rechargeable battery and electronic controls for the power assist package.

          My E.T. gets me around the lower Skagit Valley (half way between Seattle, WA. and Vancouver, BC) on the days the local transit service will not give me Dial-a-Ride Para-transit service.  Their 2 assigned days a week do not include my LOV and HOH support group meeting days nor Sunday church.  My older 72 “speed” reclining trike carried me 2000 miles in 3 years.  Lately the hills seem to grow steeper, distances greater, and head winds stronger, so last summer I decided to upgrade to power assist.  I still need to peddle to make it go but the electric/electronic power assist helps up the hills and against the head winds.  By law, such vehicles are limited to less than 20 MPH and that is plenty fast enough for my restricted vision and in one case it was too fast.  I was cruising down what appeared to be an empty 4 lane street gawking at the adjacent light industrial buildings when I found I was about to run underneath a parked black pickup truck.  I managed to swerve in time to keep from mashing my peddles and front gears but the rear basket hit the truck bumper and I went sprawling on the asphalt pavement.  A bit embarrassing, but no major damage.  I skinned the back of a hand, bruised a shoulder and broke a trike mirror.  Luckily there was no traffic.  After that, I decided to try the 28 mile ride across the Skagit Flats to attend our HOH support group meeting again.  That was a very pleasant ride in September and saved me 2 hours over the multiple bus trips.  Well…the headwinds were stiffer and required a lot more power assist and I ran out of battery power.  The daylight was shorter and ride home slower so I ran out of safe riding time even with my flashing head and tail lights.  I parked my E.T. at a friend’s house half way home but they were not home yet.  So, I ended up walking in the dark on rural roads (with the flashing headlight) 13 miles home.  Result: very sore feet and an E.T. recovery trip with a driver and van so I could recharge the battery at home. 

          The feeling of independence and freedom to make my own decisions of when and where to travel locally is well worth the expense of energy and outfitting.  In fact, I feel GREAT because of the physical exercise.  I wish the weather was better so I could ride more often.  More info or questions?  Please contact me at my email address which is:  JimBrown70@juno.com

 

READ ALONG WITH A BLIND CHILD

          BrailleInk has newly designed children’s books which allow a sighted person to read along with a blind child who is reading Braille.  The design reproduces the print and illustrations exactly as they appear in the original book and places them on the top portion of the page.  The bottom portion of the page is embossed in Braille and has corresponding print letters above each Braille cell—even identifying the contractions.  With this format, Braille readers need not cover the print and illustration with their hands so print readers are able to read along with them.  Each page in the book has an embossed border to prevent the Braille from being flattened when you close the book!  Isn’t that neat?  Go to www.exceptionalteaching.net to read more about the books.

 

WEBSITE FOR KNITTERS

          Check out http://www.lionbrand.com/cgi-bin/patternFinder.fcgi for free knitting patterns accessible in straight text without pictures for those who use voice output or Braille.  On the site, be sure to pick the display option of view without images.

 

LISTEN UP: IT'S RADIO FOR THE DEAF

Talk radio may soon get a whole new audience: the deaf.  Harris Technology recently demonstrated a technology that would enable the deaf to "read" talk radio broadcasts in real time.  The systems works a lot like close captioning does for television.  The company will piggy-back a data stream on the standard audio signal.  The text can then be read on radio fitted with a display.  The system will only work with digital broadcasts, but the company says an Internet-based solution is possible.  Currently more than 1,500 radio stations are currently broadcasting in HD Radio in the United States.  Harris partnered with National Public Radio and Towson University to develop the technology.  The group is also looking at ways to make radio listening easier for the blind.  Because modern radios often have multiple knobs and soft keys with multiple functions, Harris is also looking at ways to simplify the radio interface.

 

DOWNLOAD FREE BOOKS

          Project Gutenberg is a web site where you can go and download free books.  They have a collection of about 20,000 free books.  Go to their web site for more information: http://www.gutenberg.org/wiki/Main_Page.

 

DISCOUNTS ON PRESCRIPTIONS

          The state of WA is offering RX cards free with discounts to residents, regardless of age or income. The cards have discounts of about 20% on brand-name drugs and 60% on generics. To enroll go to www.rx.wa.gov  or call 1-800-913-4146.

 

HELP US SAVE TREES

          Help us save trees by using email instead of a paper format to get our annual newsletter!  Just contact us by email, phone, mail or in person and we will be happy to change the format for you!

 

SIGN LANGUAGE AND CELL PHONES

          MobileASL is a University of Washington project to bring the ability to communicate in ASL through cell phone PDA’s (personal digital assistants.)  The project is working on video compression to solve problems posed by low bandwidth on the wireless telephone network, which prevents good video quality needed to view ASL.  The principal investigator is Eve Riskin, professor of Electrical Engineering, and the project is supported by the National Science Foundation.  They are looking for individuals who are fluent in ASL and willing to participate in their studies.  For more information go to http://www.cs.washington.edu/research/MobileASL

 

LIONS CLUBS INTERNATIONAL FOUNDATION/REXTON PROGRAM FOR LOW-COST DIGITAL HEARING AIDS from Paige Berry, HKNC

          The Lions Clubs International Foundation (LCIF), in partnership with Rexton, Inc., is offering two digital hearing aids through Lions hearing programs and Lions clubs. This pilot program is only in the United States with hearing loss are unable to purchase hearing aids due to their limited income.

          This announcement is being sent to numerous nonprofits serving people who are deaf or hard of hearing by Jimmy Ross, the Chairperson of the foundation.

          The hearing aid program is rooted in the desire by Lions club members and audiologists to serve low-income people with hearing loss.  The Lions act as a conduit between audiologists and hearing aid recipients.  Typically, the audiologist is asked to test the patient, make ear molds, program the hearing aids and provide follow-up visits. The audiologist and Lions club agree on the charges for services, which are paid by either by the Lions club or other sources. (Eligibility for the program is limited to people at up to 200% above the federal poverty level). Hearing aids are shipped directly to the audiologist after they are manufactured by Rexton.

 

WEB EYES PROGRAM FOR THE INTERNET

Interested in a program specifically for the Internet that allows you to increase/decrease font size by hitting a + or – sign?  The program doesn't distort the web page or put blocks of content on top of each other, etc. and you can choose the "Read Like a Book" option and flip pages rather than scroll up and down.  This is great since text that's enlarged tends to go on and on.

          WebEyes is only $24.95 if you download the program or $34.95 if you purchase a CD of the program.  Once installed it appears on your toolbar anytime you go to the internet.  You need to have Internet Explorer and you can get more information at the following web site:  www.WebEyes.us

 

 “RUMBLER” --- NEW HIGH TECH POLICE DEVICE

          Soon you might be able to feel the police coming up behind you!  The “Rumbler” is a high tech blaster and it is currently being tested in a few areas in the U.S.!  It is used along with the traditional siren to grab people’s attention.  The “Rumbler” can be felt up to 200 feet away and vibrates everything by using low frequency sound waves on its pair of high output woofers and amplifier.

          Low frequency tones have the distinct advantage of penetrating and shaking solid materials allowing vehicle operators and nearby pedestrians to FEEL the sound waves, and perhaps even see their effects through a shaking rearview mirror.  The product was developed by Federal Signal Corporation.  If you want to get more information visit their web site at http://www.fedsig.com.

 

 “DEAF MOSAIC” AT GALLAUDET VIDEO LIBRARY

          Interested in seeing one of the old Deaf Mosaic episodes?  Gallaudet University now has them on their Video Library web site.  Go to the Video Library site by using the following link: http://videolibrary.gallaudet.edu.   If you are not part of the Gallaudet Community you can go to the Public Login site using this link:  http://videolibrary.gallaudet.edu/public.  They also have other viewing choices, so check out the site for more options.

 

REFEREE SIGNAL BRACELET FOR THE DEAF ATHLETE

          Celia Beron is an eighth grader from Texas and she has invented (with some help from Celia's father and two graduate students from the University of Texas/UTD) the Ref for the Deaf.  It is a special bracelet that vibrates for deaf players who can't hear the sound of a referee's whistle or starter gun.  The idea was to link the starter gun or referee’s whistle to a transmitter.  The transmitter then sends a signal when either the gun or whistle go off and the bracelet worn by the deaf athlete will vibrate.  Celia first thought up the idea as a school project and now her dad has now patented the bracelet and is looking into marketing options (with the UTD students) to start up a business.  The full Dallas Morning News article is located at this link: http://www.dallasnews.com/sharedcontent/dws/dn/education/stories/DN-deafidea_07met.ART.State.Edition1.3750673.html

 

9TH INTERNATIONAL CHARGE CONFERENCE

The 9th International CHARGE Syndrome Conference will be held on July 24th - July 26th, 2009the Indian Lakes Resort in Bloomingdale, Illinois, which is located about thirty minutes from exciting Chicago.  Online registration and updated information will be available for the 2009 conference on the CHARGE web site of: http://chargesyndrome.org.

 

*NEWSLETTER LINKS AVAILABLE ON HKNC.ORG

          As you read the newsletter, you will note many web sites.  For those of you who prefer to just click on the web site to review the information you can do this by going into the www.HKNC.org

website (please wait a little while for the newsletter to be put on the site).  Scroll down to Region 10 Newsletter, Winter 2008.  Locate the article with the website and then and click your mouse and it will give you the web page.

 

HOW CAN WE HELP YOU?

          Questions, Comments, Changes of Address or Email? Would you like to receive your newsletter in a new way (Email, Large Print, Braille Grade I and Braille Grade II)?  Just contact Taryn by phone at 206-324-9120 (V/TTY) or by email at hkncnw@qwest.net and she will be happy to make any changes you would like.  We are always happy to hear from you!            Newsletter editors are Dorothy Walt & Taryn Hill.

 

**NOTE

Information for the article on Falls and Prevention Guidelines was obtained from both the Autumn 2007 issue of the “Prism” newsletter by the Community Services for the Blind & Partially Sighted and Publication DOH Pub 341-013 titled “Stay Active & Independent for Life / An Information Guide for Adults 65+” by the Washington State Department of Health.

 

GENERAL NOTE FOR NEWSLETTER

          Products, services or activities listed in this newsletter do not imply endorsement by HKNC.  They are provided for informational purposes only.