NW Connection

Your Eyes and Ears in the Northwest

Volume #5 – Jan 2006

Helen Keller National Center in Seattle, WA

 

Happy New Year Everyone!

        2006 promises to be an exciting year.  The American Association of the Deaf-Blind (AADB) will host its bi annual Conference at Towson University near Baltimore, MD.  This year’s conference will be bigger and better than ever.  Save the dates, June 17-23, 2006, AND begin to save your money.  The early bird registration deadline is April 1st and the package deal is only $695.  AADB will mail out registration packages to paid members sometime in January or early February, 2006.  If you are not a paid member, you can request the registration packet by contacting AADB:  E-mail, AADB-info@aadb.org  or call, (301) 495-4402 (TTY) or (301) 495-4403 (V).

        Also, the annual Seabeck Retreat sponsored by the Seattle Lighthouse for the Blind will happen August 24 to Sept. 2.  For information contact by E-mail dbretreat@seattlelh.org .  I HOPE TO SEE YOU AT BOTH EVENTS!!!

        Are you wondering what’s up with the National SSP Pilot Project?  We are still waiting to hear from Congress if our appropriation request has been approved.  The war on Iraq and the two drastic hurricanes have affected the Federal government’s budget for fiscal year 2006; however, we are still very hopeful we will begin the project in the year 2006.

        The Northwest Office of HKNC continues to provide consultations to customers, service providers, parents, educators and we work in collaboration with many agencies in the four states in the region.  Our priority is to assist with helping deaf-blind folks find gainful employment in the community of their choice.  I am available to you for consultation, assistance or just to talk.  Just E-mail, phone, VP, fax or write to me and I will respond to you as soon as I can.  Have a wonderful and productive year.

        Dorothy Walt, Regional Rep./Region 10, HKNC

 

DB SPOUSAL SUPPORT

        If you are interested in finding out more about a new deaf-blind support group for spouses and partners or persons who are deaf-blind or hearing and visually impaired, send a blank e-mail request to DB-Spousal-Support-subscribe@yahoogroups.com

 

DB SPICE OF LIFE

        Another new Yahoo group for DBers is also being started called DB-Spice of Life.  Its description: Just as spices add more flavors to food, a variety of personal interests, life changes and new experiences will be the spice that makes life more exciting!  This is a group of Deaf-Blind people who love to share life stories and experiences, swap recipes, exchange helpful tips and ideas, and learn to be a more caring and supportive group. Hosts are Karen who specializes in healthy cooking and organic gardening, and Melanie who enjoys traveling and writing. You may subscribe by sending a blank e-mail to:

DB-SpiceofLife-subscribe@yahoogroups.com

 

New Company Provides Books in Alternate Formats

        Huge Print Press now provides customized large print books as well as e-text versions edited in Microsoft Word format which can be used with screen readers such as JAWS, Kurzweil, Open Book, etc.  The e-text can also be converted to Braille with Duxbury and other Braille applications.  Just send your favorite book to Huge Print Press in print and they will return it to you in 2 weeks in the format you desire.  Prices for the e-text version ranges from $.45 to $.70 per page of the original book and for large print books the range is from $.30 per page of the original book to $.99 or higher per page—all dependent on the complexity of the book (a medical textbook might be closer to the $.99 charge).  If you would like more information about this new company, check it out at www.hugeprint.com

 

HKNC Goal

        This newsletter is for the deaf-blind people of the Northwest and the people who live with them, work with them and socialize with them. The Helen Keller National Center’s regional offices are specifically for you.  They are resource centers from which you can learn where to find what you need.  The regional representative is a consultant as well as a link to existing services and resources and an advocate for people who are deaf-blind, their families, friends, and co-workers.

        Your Regional Representative is Dorothy Walt, 206-324-1133 TTY/Video Phone.  For voice callers, call 711, then give the operator Dorothy’s number.  E-mail nwhknc@juno.com or FAX 206-324-9159

Address is:     Helen Keller National Center; NW Region

                        1620 – 18th Avenue, #201, Seattle WA

 

FCC Closed Captioned Regulations

        By law, as of January 1, 2006, TV shows must be closed captioned.  For more information on the rules and regulations check it out at the Federal Communications Commission’s website: http://www.fcc./gov/cgb/dro

 

Free Hotline Available for Air Travelers

        The Office of the Assistant General Counsel for Aviation Enforcement and Proceedings has a toll free number for consumers who experience disability-related air travel problems.  The hotline, which is staffed from 7 AM to 11 PM (EST) seven days a week, provides general information and assistance to consumers about the rights of air travelers with disabilities.  The phone numbers are 800-455-9880 (TTY) and 800-778-4838 (V).

 

HKNC Alumni Newsletter

        Were you a student at HKNC? Do you want to keep in touch with other former HKNC students? Add your name to the e-mail list or mailing list by contacting Susan Shiparo at hkncalumni@aol.com

 

How Can We Help You?

        Questions, Comments, Changes of Address or E-mail? Would you like to receive your newsletter in a new way (E-Mail, Large Print, Braille Grade I and Braille Grade II)?  Just contact Taryn by phone at 206-324-9120 (V/TTY) or by e-mail at hkncnw@qwest.net and she will be happy to make any changes you would like.  We are always happy to hear from you!

 

Helen Keller’s Going to Washington!

        The first lady of Alabama, Patsy Riley, has announced that nationally recognized sculptor, Edward Hlavka, has been chosen to create a statue of Helen Keller to be placed in the National Statuary Hall at the Capital Building in Washington, D.C.  The statute will depict Helen Keller as a child by the water pump when she was first able to communicate with the outside world.  The completed statue is scheduled to be unveiled in June, 2006.

 

Flying Blind and Deaf but Not Alone           

By ANINDYA BHATTACHARYYA
        WHEN you are deaf-blind, technology is an ever-present companion.  I travel with a laptop for e-mail, phone and Internet access.  I use a G.P.S.-equipped Braille Note note-taker to get information about my surroundings. To communicate with others, I have a Screen Braille Communicator with two sides: one in Braille, which I can read; the other an L.C.D. screen with a keyboard, for someone who is sighted.
        My other traveling companion is my guide dog, a yellow female Labrador retriever named Dinah.  But there is no substitute for the human touch. For example, printing letters on my palm is sometimes quicker and easier than the Screen Braille Communicator.  And I still have to rely on other people - everyone from flight attendants, hotel clerks and cab drivers to the airline staff escort I need to get through security.  Occasionally, I also turn to other travelers for assistance.
        One of my most memorable experiences with a Good Samaritan happened a few years ago.  My flight from Atlanta to New York had been canceled.  The next flight was supposed to leave at 9 p.m., but by 8:45 p.m., we still hadn't boarded. Someone finally came over to tell me the flight was now scheduled for 11 p.m. and that it would be a different flight, going to John F. Kennedy Airport instead of La Guardia.  But 11 p.m. came and went, and I still didn't know what was going on.
        I started waving my arms to attract someone's attention, and a man came over. I showed him my communication card and how to print on my palm.  His name was Allen, and he told me we were delayed until midnight. He said he would sit with me on the plane. We finally boarded, and when we sat down, I realized we were in first class because the seats were leathery and the armrests were wider.
        I was so exhausted that I napped often during the flight. Allen became my interpreter, making sure I got any food or drink I wanted from the flight attendant.  I figured they must have upgraded us because of the delay. I sometimes get bumped up if there are open seats because airlines don't have much room for Dinah.  I always try to get the bulkhead seat, but there have been times when my canine companion ends up sitting in the aisle.
        When we landed, Allen helped me find a bag and a cab to the Helen Keller National Center. I asked him how much it would cost me to get back to the office, and he traced on my palm with his forefinger "Don't worry about it."
        A few days later, the executive director of the center, Joe McNulty, visited me.  "Remember that guy Allen you met on the airline?" he asked. "He called me to find out if you made it back here O.K. Do you know who he is?"  "No," I said.  He was Allen Brill, the chief executive of Rolex USA (An expensive watch company.).
        As told to Christopher Elliott.   E-mail: elliottc@nytimes.com New Yor
k Times, Tuesday, August 30, 2005

 

Town for Signers Being Developed!

        A town is being formed in South Dakota and it will be a society for those who use American Sign Language!  The name of the town will be Laurent, after Laurent Clerc, a French educator of the deaf from the 1800’s.  For more information on this town please go to their web site at www.laurentsd.com

 

No limits--Blind and deaf man enjoys life to fullest
By Amy Maginnis-Honey

        David Bess Jr., 43, is deaf and blind.  But that hasn't stopped the former Fairfield, GA resident from living life to its fullest.  He works two jobs, including doing janitorial work at the Sacramento Hostel.  He uses power tools, snow skis, and even treks to his neighborhood bar for a brew with some friends.
        He is the main subject of "Visions," a memoir by his mother Janie P. Bess, who lives in Fairfield.  Janie Bess said, "David loves everybody. That's just David. His favorite job is picking up and dumping the trash at the hostel.  He also loves having his own apartment, with fiancée Shirley Schoenwald in Carmichael.
        "Visions" is also a look into Janie Bess' life. She was an aspiring singer, who missed a chance to open for Ray Charles, when she fell ill with rubella.  At the time she didn't know she was pregnant.  Born six weeks premature, David Bess Jr. had his first eye surgery when he was 2 months old and he lost all vision when he was 5 years old.
        Janie Bess suspected there was something wrong with her son's hearing but doctors insisted otherwise. However, when he didn't react to her dropping an iron skillet on the floor, she made a scene in an Air Force clinic to get him help.  David was about 2.  “The doors really opened for David then," his mother said.
        Only 19 when she gave birth to David, Janie grew up with her son and learned with him.  "God gave me the nerve to stand up to people," she said. "I used to be the cry baby in the family."

        The book was written to encourage others. "I've found so many people who have less than David," she said. "And they say 'my life is over' and they give up."  She offers them no pity, instead telling them to count their blessings rather than complain.
        Janie Bess said, she couldn't be happier. "David has had a full life. He has touched so many lives," "I'm so proud of him.”

 

SHHH Changing Name to Hearing Loss Association of America

        The Board of Trustees of Self Help for Hard of Hearing People voted to change the name of the organization to the Hearing Loss Association of America on November 6, 2005 during their fall meeting.

 

Traveling? These Tips Could Make It Easier

        (Here is the second and last part of Travel Tips!  First part in January 2005 newsletter.)

 

1.    Ask a fellow traveler on the same flight to inform you of any important announcements or changes in flight plans. 

2.    If you need large print or Braille for the in-flight safety announcements, the airline should have those accommodations.  They are not supposed to take off until everyone has access to the safety information.  You can request it before you take off.

3.    It’s a good idea to let the attendants know you have a vision and hearing loss; and how to communicate with you.

4.    Explain to the attendant, how to get your attention when they are passing out drinks, a meal, snacks, or if there is an emergency.

5.    If you do not hear well, you are not supposed to sit in the emergency exit rows.  Ask your seatmate to alert you if any unexpected announcements are made.

Shuttles & Taxis

        As you get in, tell your driver your hotel or airline.  Give him a card that says something like “Hard of hearing, King George Hotel.”  This is especially important in foreign countries.

Hotels and Motels

1.    Request an ADA Kit for the hearing impaired, normally it will include the following items:

Amplified phone or TTY

Visual/tactile alarm clock

Door knock alert

Telephone alert

Smoke alarm alert

Fire alarm alert

 

You may need to bring your own vibrator to connect to the ADA equipment supplied by the hotel.

2.    Try to get a room on the sixth floor or below as aerial ladders only reach to about the sixth floor.

3.    Try to get a room near the fire exit.  If a fire does occur, you may be able to hear/feel lots of noise and vibration of people running up/down the stairs.  Then you can step out to find out what’s going on.

4.    To orient yourself to the hotel, fire exit, elevators, restaurants, etc., ask the hotel staff to guide you and show you where everything is located.

When you check in

1.    Ask for your specific accommodations and ask to have them installed.

2.    Ask the hotel to leave notes under your door instead of messages on the phone.

3.    If you have a trusted friend who is also staying in the hotel, ask that the hotel give your friend a key to your room, in case of emergency.

If the hotel can’t provide specific accommodations, you might want to:

1.    Bring your own portable telephone amplifier or TTY

2.    Bring your own vibrating or flashing light alarms

 

An Affordable Hearing Aid?  It’s About Time!

        With over 28 million Americans who have a hearing loss, the Lions Affordable Hearing Aid Project (AHAP) developed a low cost, high quality hearing aid which at a little over $100 has proven to perform as well as aids that sell for $2,000.  This aid is only available through Lions Clubs in partnership with local audiologists.  Whereas these partnerships exist worldwide, so does the AHAP program.  Read more about this program at their new, cleverly named web site: www.lionsear.org

or call them at 630-571-5466, ext 615 voice.

 

Make It TWO Affordable Hearing Aids!

        Ever hear of the program “HEAR NOW”?  They became part of Starkey Hearing Foundation in 1999.  They accept donated used hearing aids which are sold to a repair lab.  The money generates funds for the “So the World May Hear” Program which allows persons with low income to purchase a hearing aid for the cost of the application process ($100 for one or $200 for two).  Complete instructions and application are available on the Starkey web site at www.sotheworldmayhear.org

Click on “HEAR NOW” and follow the link to the application.  If you have questions or do not have access to the Internet, call 800-648-4327 (voice) and Starkey staff will return your call.

 

Information about AFB scholarships

The American Foundation for the Blind has scholarship information available on their web site for those who are planning to go to college.  Go to www.afb.org/scholarships.asp  and look at the six (6) possible scholarships.  All require the applicants to be legally blind.  Please see the AFB web site for specific criteria. Applications and all required supporting documents must be received at AFB postmarked no later than March 31, 2006.

 

Ever wondered about that tax exemption for blindness?

        If your vision loss has worsened in the last year you might not be aware of this little tax trivia.  When filing your federal income tax, if you are considered legally blind, check off the box (for yourself or your spouse), and attach a letter from your doctor documenting the fact.  If this statement certifies that the condition is unlikely to improve, a new certification is not required in subsequent years.  The deduction can be a large amount (approximately $1,000) so it might be worth checking out.  For more information, contact your tax preparer or check the IRS web link for standard deduction tables. 

 

Hadley Opens Online Discussion Board!
        The Hadley School for the Blind (Winnetka, IL ) has created a new and exciting online discussion board (started 09-15-05).  Visitors to the Hadley Web site will be able to join discussions by simply registering with a valid email address. Go to www.hadley.edu  and   activate the "Forums" link to reach the Hadley Discussion Board.  Follow the "Register" link to join the forums.
        Moderated by school staff, the online discussion board offers five forums: Braille, technology, professionals, families and general inquiries. The Hadley School for the Blind is one of the largest worldwide educators of blind and visually impaired people.

 

Deaf-Blind Techies ListServe

        Bapin (HKNC Headquarters, Technology Center) wanted everyone to know the change in the DB Techies ListService.  John Cunniff, moderator of the DB Techies mailing list, decided to move the list to a new listserve server run by Western Oregon University under Randy Klumph's direction.

        To subscribe to DB Techies on the new server, please send a message to the following address: dbtechies-subscribe-request@tr.wou.edu  You then will receive a message with directions on how to verify that you are subscribed to the list. If you have any questions, you can e-mail to John at johnc@shellworld.net

 

Tip of the Month  

        Burnt Food Odors — To neutralize burnt FOOD odors in the house, mix 1/2 cup whole cloves with 2 cups water in a saucepan and bring to a boil.  Simmer cloves for 15-30 minutes.  The house smells wonderful and the burnt odor is gone.

 

Interesting Tidbits

        Over three million girls are part of Girl Scouts of America because of a deaf woman.  (Juliette “Daisy” Gordon Low)  You owe this woman for your cookies!

        William “Dummy” Hoy was a professional baseball player who happened to be deaf.  He developed the original idea and signs still used today by umpires of the game.

        “Deaf people can do anything but hear.”  I. King Jordan

 

        NOTE: Products, services or activities listed in this newsletter do not imply endorsement by HKNC.  They are provided for informational purposes only.