HKNC STAYING CONNECTED

 

North Central Region – IL, IN, MI, MN, OH, WI

Volume 2, Fall 2006

 

 

Autumn has arrived and the festive holidays are just around the corner. Having enjoyed the summer’s warmth now brings us to preparing for long winter days. Here’s some fun and educational reading as we welcome you to our Helen Keller National Center (HKNC) North Central’s second regional newsletter, STAYING CONNECTED.

 

We find regional newsletters to be a wealth of information and resources. There is so much out there! This newsletter is for everyone: the Deaf-blind community and its’ supporters in the North Central region. Our focus this time is two-fold: share with you what is happening in the six states in this North Central region and information/resources. You can use it to find out about national, regional and statewide activities, as well as updates on services, resources and programs. Also included, is information on publications/websites and a calendar of conference/events. Years ago, there was very little happening in the country and now, it is a challenge to capture all that has developed. There is one common thread among us all: we are constantly learning, advocating for equal access and getting more individuals to work together to improve the quality of programs and services.

 

HKNC’s mission is to enable each Deaf-blind person to live and work in the community of his or her choice. This is possible by sharing resources and collaborating together, involving individuals who are Deaf-blind, their families, service providers and the communities.

 

You have so much to share with everyone! Let us know what is happening with you, in your area, your organization, program or agency. Please inform us of any ideas or suggestions that you may have for the next newsletter. If you know someone who is Deaf-blind or any individual who might like to receive this newsletter, please complete the last two pages and return to our office.

 

Our HKNC North Central region office is located in East Moline, IL, approximately three hours west of Chicago, very near the Mississippi River. Laura J. Thomas HKNC5LJT@aol.com, Regional Representative and Catharine Papish HKNCROA@aol.com, Regional Office Assistant, make a dynamic team. You can reach us via e-mail, 309-755-0018 (V/TTY/VP) or 309-755-0025 (Fax) and we are here to assist you. Much appreciation goes to Ms. Papish for putting this newsletter together.

 

Note: The naming of products, services or activities in this newsletter does not necessarily imply endorsement by HKNC. They are provided as information only.

 

What are some things your Regional Representative can do for you?

Help you find and use existing services and resources in your local community.

·       Work with you for improved services when they are needed.

·       Consult with individuals, their families and/or agencies.

·       Serve as your connection to our program in Sands Point, New York. We offer excellent rehabilitation services, including short-term training in computers and adaptive technology as well as other programs designed for high school students and senior adults.          

·       INCLUDE YOU on the National Registry – more on the Registry follows.  

     

Please visit our web site www.hknc.org or contact your Regional Representative. We would enjoy hearing from you.

 

THE REGISTRY

 

Helen Keller National Center is required to maintain a National Registry of persons who are Deaf-blind or who have a combined vision and hearing loss that is severe enough to create challenges in life activities, at home, in the community and at work. Due to confidentiality issues, let us assure you your information is kept private. We take this responsibility very seriously.

 

HOW WILL HKNC’S REGISTRY INFORMATION BE USED?

Although all personal information about individuals will be kept confidential, statistical information will be used to benefit the Deaf-blind community.

·       It will be shared with adult service programs so they can better prepare to serve Deaf-blind adults, as well as young adults when they transition to adult services.

·       It will be shared with teachers, personnel and interpreter training programs to better prepare these professionals to work with you.  

·       It will be used to help with research that will be beneficial to the Deaf-blind community.

·       It will be shared with the federal and state governments as they develop priorities for program funding. If we prove to the government that there are many people needing services, there is a better chance that Deaf-blind services will be funded.

 

HOW CAN YOU HELP? Approximately 10,000 people have already decided to put their names on the Registry, but we know there are many thousands more. If you have not yet done so, please complete a registry form today. Anyone who is Deaf-blind, of any age, is eligible to be on the registry. We have included a copy of the Registry form at the back of this newsletter, which you can mail back to us. Or if you prefer to call us, we will be happy to complete the form with you on your behalf. You can also complete a registry online at our website: www.hknc.org. If you move, or your name changes, please let us know so we can make the changes on your form. Thank you for helping us support the needs of the Deaf-blind community as a whole.

 

CONSUMER SPOTLIGHT

 

JILL GAUS - Michigan

 

Meet Jill Gaus - a woman of many talents and accomplishments! Back in 1997, she arrived at Michigan’s very first Deaf-blind Weekend (DBW) in Brooklyn, MI, not knowing what to expect. At the urging of her husband, Jim, and Rose Smith, then hard of hearing specialist with the MI Division on Deaf and Hard of Hearing, Jill reluctantly went. This experience changed her life forever. If Jim hadn’t packed her suitcase or if it weren’t for a phone from DBW to “call home,” Jill would not be doing what she is now. On the very last day of this DBW, Dr. Jeffrey Bohrman, who was a trainer/ presenter, stood up and signed, “Michigan needs a group and who will do this?” Coming out of her fear, and with courage, Jill stood up and ever since that significant day, she has learned, researched, and asked questions, and arrived where she is today.

 

      From that day to this day, Jill is:                                                   

     

·       Director of MI DBW at DeSales Conference Center in Brooklyn, MI, and formerly Summer Programs Coordinator for all D/HH, DB programs at the Holley Ear Institute’s Family Village. Being an exemplary model, Ohio established their DBW after MI and Illinois will have theirs in 2007.

 

·       Co-founder, Past President and currently Treasurer of SHI-M=DB (Self-Help for Independence in Michigan: Equalizing the DeafBlind Community). She is mentoring the newly elected President and Vice-President. Jill has tirelessly raised funds for SHI-M=DB.

 

·       Board member of American Association of Deaf-blind and chair/member of membership, finance and SSP committees. Representing AADB, Jill co-presented leadership training to members of the IN Association of Deaf-blind.

 

·       Consultant for DB Central, MI Services for Children and Youths who are Deaf-blind. Jill and two co-workers planned and facilitated the first ever camp, Deaf-Blind Transition Camp (DBTC) for Deaf-blind teenagers, held at MI State University. The third DBTC is in the planning stages.

 

·       Past Member of the MI Self-Help for the Hard of Hearing (now Hearing Loss Association of America) Advisory Council, as well as different positions within SHHH. Also a member of the MI Division on Deaf and Hard of Hearing Advisory Council.

 

·       Works as a licensed practical nurse (LPN) for different groups – MI Youth Leadership Forum, Deaf Youth Leadership Week, MI DBW, and DBTC.

 

·       Instructor at Lansing Community College and MI State University, teaching sign language and ITP students, nursing students and EMT staff about working with Deaf-blind individuals, Deaf-blind interpreting and the role of SSP.

 

·       As a certified/trained Hearing Technology Resource Specialist, provides information and training to businesses and organizations, D/HH and visually impaired groups.

 

In addition to all of the above, Jill is providing consultation and training to the University of Alaska towards establishing camping experiences for D/HH/DB teenagers and adults to experience the Alaskan culture. Jill is a familiar face to Lions Club, where she and Heidi, her leader dog, gives presentations for fund-raising.

 

Always on the go, Jill has SSPs working with her. Along with Heidi, Jill’s leader dog, SSPs provide Jill access to environment and give visual/auditory information as well. Oftentimes, the agency/ organization she works for pays for SSP services or Jill pays them herself, if they are used for personal reasons. Other times,           reciprocal agreements work best – “you do this for me, I do this for you.”

 

      All these years, Jill felt people telling her what she could do or couldn’t do was not empowering. Through learning experiences, trials and tribulations, she has grown to trust herself by proving that she can do it. Jill feels in order to become independent and believe in yourself, it requires not allowing others to control your life. It can be most frustrating for Jill when she hears of a Deaf-blind person saying, “I can’t.” Jill’s philosophy is: “How do you know unless you have tried? So what we have a few limitations? Doesn’t

      everyone?” When people ask Jill what it feels like not to be normal, she asks them what normal is and they stutter!

 

      All of Jill’s accomplishments do not go unnoticed. With her support system, including her husband, Jim, and her leader dog, Heidi, SSPs, different agencies and Deaf-blind individuals she has met from all over, she believes in herself and others. Jill feels having one life to live and living it fully, believing in your gifts and contributions can go a long way.

  

      An amazing woman, isn’t she? She is a true inspiration and testimony that with sheer willpower and determination, nothing is impossible. She is a friend, role model, mentor, supporter and listens with her heart, with whoever she comes into contact with. She would love hearing from you and sharing her enthusiasm and love of life. Jill is available for consultation and training - you may reach her at: jgaus2@gmail.com

 

TECHNOLOGY UPDATES     

 

Through 2006 you can trade in your HumanWare Notetakers and save more than 70% on a PAC Mate. MAGic 10.0 has been released and the Automatic update of JAWS for Windows 7.10 is now available! For more information and details visit: www.FreedomScientific.com

 

The Chicago Lighthouse has established an assistive technology support line for any questions regarding hardware, software, or any version of Windows; however, the customer must be blind or visually impaired. Any individual working with blind/VI consumers are encouraged to call. This service is nationwide and Linux is also supported. Contact Ray Campbell at 888-825-0080 (V).

 

The ZoomText Large-Print Keyboard is the perfect companion to the ZoomText Magnifier and ZoomText Magnifier/Reader. More information is at: http://www.aisquared.com/Products/Keyboard.cfm

 

A new screening for Usher Syndrome is being researched and tested. For more information and details - www.tr.wou.edu/tr/dbp search the archives for May 2006, Volume 13, Issue 3 and go to Research Updates.

 

An international retinal research team funded by the Foundation Fighting Blindness has restored vision in mice with retinitis pigmentosa. The retinal cell transplantation study was successfully performed on three different mouse models of retinal degeneration.


The researchers used two different techniques to verify that the mice had restored vision. For more information on retinal degenerative disease research, visit www.FightBlindness.org

 

A new visual aid that promises to improve the visual abilities of people with tunnel vision has been invented by scientists at Schepens Eye Research Institute, an affiliate of Harvard Medical School. Visit their website at: www.theschepens.org/tunnel_vision_release.htm

 

Kurzweil-National Federation of the Blind Reader combines a state of the art digital camera with a powerful personal data assistant housed in a custom-designed case. Over a printed document hold the camera and snap a picture, in seconds you can hear the contents of the printed document. More information and details can be found at www.knfbreader.com

 

Online Conferencing Systems has created an online Resource library. There are 200+ free applications for assistive technology more information at: www.onlineconferencingsystems.com/at.htm

 

ACCESSWORLD Magazine has information on accessible cell phones, voting machines, accessible office equipment and medical devices. For the latest news in technology and visual impairments, visit the website www.afb.org/aw/main.asp 

 

A travel alarm clock that is tactile and has glow in the dark hands, item # 704440, is available with an optional adapter and vibrator accessories. For details go to: www.maxiaids.com/store/prodView.asp   

 

Optelec USA bought out the Alva Company. Alva Braille displays and Alva Satellites will still be manufactured and sold. There is also a new generation of displays called the Alva A4 Glider. It is full of new features, and can be connected to a PC wirelessly, has a long battery life and weighs a little more than one pound! (Excerpts taken from HKNC SW Newsletter, Vol. 1 Spring 2006).

 

Quantum Technology in Rydalmere, Australia, has developed a low cost mechanical solution for writing Braille called the Jot-A-Dot. This device has a regular 6 dot Braille keyboard but fits into your pocket - no batteries either, it’s totally mechanical! The Jot-A-Dot weighs just over a pound (as opposed to the Perkins Brailler which weighs 11 pounds) and enables the user to instantly read what they have written without having to disassemble the unit as with the slate and stylus (one exception is the APH “Brown” slate which can be opened from the back to read the dots.) This device will cost $340.00 and will be available in the near future. (Excerpts taken from HKNC SW Newsletter, Vol. 1 Spring 2006).

 

Several models of the Perkins Brailler are now available in different colors. Also the Light Touch model standard brailler, which reduces the force required to operate the braille keys by up to 40 percent is now for sale, along with Light Touch electric braillers. For further information about models and pricing visit www.perkinsstore.org or call 877-473-7546. (Excerpts taken from The Braille Forum, September 2006).

 

REGIONAL

 

NEWS FROM ILLINOIS

 

      The Dept. of Human Services/Office of Rehabilitation Services has two Deaf-blind specialists, who provide technical assistance and consultation to ORS and BBS (Bureau of Blind Services), counselors, individuals who are Deaf-blind and their families. For more information, contact: Joseph.Parvis@illinois.gov, 312-814-5372, (V/TTY), Robert.Griffith@illinois.gov, 217-245-1642 (V/TTY) or Ingrid.Halvorsen@illinois.gov, 312-814-3890 (V/TTY), Manager of D/HH Services.

 

      The Philip J. Rock Center and School (PRC) serves two different functions in the provision of services to individuals who are Deaf-blind. The residential school, in Glen Ellyn, offers one of the most intensive, comprehensive educational programs available for children who are Deaf-blind in the 3-21 age groups. The Center provides statewide technical assistance and administers the federally funded grant, Project Reach: Illinois Deaf-blind Services. This project supports the Deaf-blind specialists, who live and work in the different geographic areas within Illinois, in their efforts to identify needs and provide assistance to children who are Deaf-blind (ages birth to 21). For more information, go to: http://www.project-reach-illinois.org/prc.html

 

      Earlier this year in Rock Falls, Kreider Services, Inc. built and opened a third residence for Deaf-blind individuals, who have developmental disabilities. Heartfelt thanks go to HKNC’s National Training Team for training residence staff and Deaf-blind individuals in preparing for the transition. 

 

      With the support of the Chicago Lighthouse/Deaf-blind program and this HKNC regional office, the IL SSP Task Force now has the support of the IL Deaf/Hard of Hearing Commission (IDHHC) and the Department of Human Services/Office of Rehabilitation Services  (DHS/ORS). For information about this task force and the services/ programs of the Chicago Lighthouse/Deaf-blind program, contact: Joann.Rushing@chicagolighthouse.org or   mindy.mayer@chicagolighthouse.org

 

      Columbia College in Chicago will offer its 3rd SSP four-day course, to be followed by an Interpreting with Individuals who are Deaf-blind course, during its January 2007 “J-session.” For information, contact Diana Gorman at: dgorman@colum.edu.

 

      Hearing and Vision Connections is conducting a Deaf Mentor training on April 17-18, 2007 for any individual in Illinois who is Deaf or Hard of Hearing and is interested in becoming a Deaf Mentor in the Illinois Early Intervention system. More information and an application can be found at www.morgan.k12.il.us/isd/hvc (see “Providers” tab.) or contact Nancy Scott at 877-731-8184 (V).   

      

      Plans are underway to have the first Illinois Deaf-blind Weekend (DBW) during the summer of 2007, modeled after the MI program, in collaboration with CATIE (Collaborative for the Advancement of Teaching Interpreters Excellence). This educational and hands on experience is for Deaf-blind individuals, interpreters, and ITP students. For information, contact Laura J. Thomas at:

      HKNC5LJT@aol.com

 

The Camp Lions of Illinois - Helen Keller Adult Camp is tentatively scheduled for June 10-17, 2007 at Camp Reynoldswood in Dixon, IL. This camp is free of charge and you will need to provide your own transportation to and from the camp. For more information and an application, contact Alan Wilson at: adwilson@tbc.net, 800-955-5466, ext. 231 (V), or 800-933-3937 (TTY).

 

      Into its 14th year, the Northern Illinois University's Institute on Deafness is offering its Certificate Training program in working with individuals who are Deaf-blind from June 10-29, 2007 in DeKalb, IL. This fifteen graduate credit program includes a three-week intensive on campus training, followed by distance learning. In collaboration with the Helen Keller National Center, it is designed to provide quality continuing education to rehabilitation professionals who wish to improve their skills in providing quality vocational rehabilitation services to individuals who are Deaf-blind. Fully funded by the U.S. Department of Education/Rehabilitation Services Administration, it includes tuition, fees, travel, lodging and per diem, at no cost to accepted applicants. For more information, contact: Souellet@niu.edu, 815-753-6514 (V), 815-753-9125 (TTY).

 

LeCOBDA (the Club of Blind-Deaf Adults), is a social organization with elected officers and meets nine times a year. SSPs are welcome and below follows their schedule:

 

December 9, 2006 – Holiday Celebration at the Chgo LH
January 2007 – No LeCOBDA
February 17, 2007 – SSP Recognition Day at the Chgo LH
March 17, 2007 – Craft Day at the Chgo LH
April 21, 2007 – Bowling – Waveland Bowling Alley                        

May 19, 2007 – Celebrate LeCOBDA at a restaurant
June 2007 – No LeCOBDA
July 21, 2007 – Cruise at the Navy Pier
August 2007 – No LeCOBDA

September 15, 2007 – Lincoln Park Zoo
October 20, 2007 – Oktoberfest or Halloween at the Chgo LH
November 10, 2007 – Thanksgiving Luncheon at a restaurant
December 8, 2007 – Holiday Celebration at the Chgo LH

For additional information, contact Mindy Joy Mayer, President, at:
mindy.mayer@chicagolighthouse.org

 

NEWS FROM INDIANA

 

The Indiana Deaf-Blind Association (InDBA) had a successful leadership training program, provided by two AADB board members, this year. New officers were elected, including a PR/Grants coordinator and SSP coordinator. Their next meeting was scheduled for November 11, 2006 in Muncie. To recruit new members throughout the state, they meet at different cities. Many activities are planned for 2007. For information, contact: kcweldy@yahoo.com

 

The IN Deaf-Blind Task Force, composed of individuals who are Deaf-blind, state & agency service providers and this HKNC regional office meets every two months in Indianapolis. Several main goals include: identification/census gathering, needs assessment, consultation and training. Other current issues include: state definition of Deaf-blind, position paper on SSPs (for funding purposes) and consensus on its mission statement. For additional information, contact: Kathy.Ashley@fssa.in.gov, or call 800-545-7763.

 

The Indiana Deafblind Services Project in Terre Haute provides student and family support, technical assistance, training, including census gathering throughout the state. The project publishes Deafblind Focus twice a year and News and Notes, monthly. For more information about this project and access to their publications, go to: http://www.indstate.edu/soe/blumberg/Deafblind.html

 

      For the past four years Customized Employment (CE) was a collaborative project sponsored by the Department of Labor/Office of Disability and Employment Policy, awarded to the Indianapolis Private Industry Council in partnership with the Department of Workforce Development, Easter Seals Crossroads, Goodwill Industries and the Office of Vocational Rehabilitation. The funding ended September 30, 2006; however, in Marion County, Indiana, Vocational Rehabilitation picked up the funding for the 5th year of the project. As of October 1, 2006, the CE project is a partnership between Goodwill of Central Indiana, Easterseals Crossroads, and Vocational Rehabilitation. The CE project is being utilized by two individuals who are Deaf-blind. This approach to employment services is based on the individualized determination of the strengths, needs, and interests of the individual. This approach assumes the provision of negotiated, reasonable accommodations and the development of supports necessary for the individual to perform the functions of a job. CE is a viable employment alternative for people with multiple barriers who couldn’t find employment using traditional Supported Employment methods. Hopefully, CE continues indefinitely and becomes Best Practices nationwide. For additional information about CE, check www.crossroads.easterseals.com, under Employment Services.

 

NEWS FROM MICHIGAN

     

The Self-Help for Independence in MI = Equalizing the Deaf-blind community (SHI-M=DB) will have its holiday gathering/meeting on December 16, 2006 at DeSales Conference Center - Family Village. For more information about SHI-M=DB, contact Jeff Smith at: jsmithshimdb@hotmail.com or Jill Gaus at: jagaus@sbcglobal.net

 

This August 2006, the 10th Annual MI DeafBlind Weekend (DBW), at the DeSales Center in Brooklyn, MI, was a huge success. Collaborating with different organizations and agencies, this program is unique in providing educational programming for both DeafBlind adults and interpreters, who want to gain knowledge and actual experience in working with DeafBlind adults. The 11th Annual MI DBW is scheduled for August 16-19, 2007 and for more information, contact: jgaus2@gmail.com

 

      The "Best Practices - a Guide and Checklist for Agencies Serving People Who are Deaf, Hard of Hearing or Deaf-blind " was developed by a workgroup brought together by the MI Division on Deaf and Hard of Hearing. This is an excellent document when advocating for accommodations and access when serving as a model agency in the community. For a copy, go to: http://www.michigan.gov/documents/Guide_and_Checkpoints_125471_7.doc    

 

DB Central, Michigan Services for Children & Young Adults who are Deafblind, is a statewide technical assistance federally funded project, that provides information, training and support for families and educational professionals who have or are associated with a child who is Deafblind. Their DB Star, a quarterly publication, is available on their website. For additional information about their services, check: www.dbcentral.org or call 888-758-0508 (V/TTY).  

 
NEWS FROM MINNESOTA

 

      Check out the Minnesota DeafBlind Association (MDBA), the heart of the DeafBlind community, website, www.deafvision.net/mdba/ for information about joining, their workshops and annual events, and informational links. Their general email is: mdba@deafconnect.com

 

      DeafBlind Services Minnesota (DBSM) in St. Paul just celebrated its 20th anniversary of serving the MN Deafblind community. In addition to the many services and activities, DBSM started the DeafBlind Support Group Pilot Project. For information about their services, check www.dbsm.org or call 612-362-8454 (V), 612-362-8422 (TTY), 612-362-8433 (VP).

 

     The Minnesota Deafblind Technical Assistance Project provides support, training and technical assistance to families and educational teams, who work with infants, toddlers, and youth who are Deafblind throughout the state. Check them out at www.DBPROJECT.MN.ORG or call 800-848-4905. 

 

      The Duluth Lighthouse for the Blind/Hearing and Vision Loss Program (HVLOP) provides Intervenor/SSP services to individuals experiencing hearing and vision losses. For additional information about the HVLOP program, go to: www.lighthousefortheblind-duluth.org/HVLOP.htm or call 800-422-0833.

 

NEWS FROM OHIO

 

The Ohio Deaf-Blind Outreach Program (ODBOP) in Columbus, completed its statewide census of Deaf-blind individuals this year. This will assist the state with identification, advocacy for increased funding and advocating for specialized services. For information about the census and ODBOP’s programs, contact Dr. Jeffery Bohrman at: jbohrman@columbusspeech.org

 

The Ohio Center for Deafblind Education (OCDBE), a federally funded project, provides services in Ohio for individuals, birth through 21 years, who are Deaf-blind, including collaborative technical assistance to families, educational personnel and service providers through training and information dissemination. They publish the bi-monthly, The Buckeye Link. For more information, go to, www.ssco.org/ocdbe/deafblind.html   

 

The Ohio Association of the Deaf-Blind (OADB) hosts quarterly meetings in Columbus. In August OADB had its second Ohio Deaf-Blind Weekend for Deaf-blind campers and interpreting students. Every year, OADB puts on a holiday event during the month of December. This year’s Holiday party will be held at the Senese –Catering by Design in Columbus, on December 9, 2006. Anyone is welcomed and for further information about OADB’s events, contact Lynn Jans@aol.com  

 

Columbus Colony Elderly Care (CCEC) is the only Medicare/ Medicaid certified skilled nursing care facility in the USA, dedicated to providing health care to Deaf/HH and Deaf-blind individuals. Sharing the campus with CCEC are two independent living apartment complexes, Columbus Colony Housing (CCH) and Columbus Colony II. To learn about their programs for Deaf-blind individuals, visit their website www.columbuscolony.org   

 
NEWS FROM WISCONSIN

 

      The Center for Deaf-Blind Persons, Inc. (CDBP) provides information & referral, rehabilitation training, services to families and communities, and SSP services. W.I.S.H. (With Impaired Sight and Hearing), a monthly social group, provides opportunities for meaningful activities and communicating with each other. They are located in Milwaukee and for additional information: www.deaf-blind.org, or call 414-481-7477.

 

Through the Wisconsin Educational Services program for the Deaf and Hard of Hearing (WESP/DHH), technical assistance for students who are Deaf-blind, schools, and parents as well as assessments are provided. For information, contact: 608-261-6326 (V). WESP/DHH also works with the Wisconsin Deafblind Education (WDBE) federally-funded project, which also conducts an annual census. For information, contact: 920-929-9260 (V). Their joint website is: www.dpi.wi.gov/sped/deafblind.html 

 

The Department of Workforce Development, Vocational Rehabilitation, now has a state consultant, with specialty in providing quality services to individuals who are Deaf-blind. For assistance, contact: Kim.Bruno@dwd.state.wi.us or 262-521-5300 (V).

 

Note: Due to the limitation of space it was impossible to include everything. The updates and resources for each individual state only represent some of the activities happening. For more information or specifics, contact Laura J. Thomas at HKNC5LJT@aol.com   

 

EMERGENCY PREPAREDNESS

 

At HKNC, we are encouraging people to put together a small “emergency bag” that could be kept at your bedside or other convenient location so you could grab it at a moment’s notice. Following is one example of a supply list (printed from the newsletter of Charlotte Regional Resource Center in Charlotte, NC) that may be helpful to you in preparing for a major disaster.

 

Water: at least 1 gallon daily per person for 3 to 7 days

Food: at least enough for 3 to 7 days

-  non-perishable packaged or canned food/juices; snack foods

-  foods for infants or the elderly

-  non-electric can opener

-  cooking tools/fuel

-  paper plate/plastic utensils

Clothing: seasonal, rain gear, sturdy shoes

Blankets and Pillows

Special Items:

-  for babies and/or elderly

-  toiletries, hygiene items, moisture wipes

-  First Aid Kit, medicines, prescription drugs

Flashlight and Batteries

Radio: Battery operated and NOAA weather radio

Cash: Banks & ATMs may not be open or available for extended periods

Keys

Toys, Books and Games

Important Documents: inside a waterproof container

-  insurance policies

-  medical records

-  bank account information

-  Social Security card

Tools: keep a set with you during the storm

Vehicle fuel tanks filled

Pet care items:

-  proper identification

-  ample supply of food and water

-  a carrier or kennel, muzzle and leash

 

Val Chmela, HKNC Communication Specialist, is doing work on Emergency and Disaster. She has handouts from AADB with regards to this in braille format and a large print pictorial format. She is also working on a PEPnet monograph for college freshman dorm safety and a first responders program with the American Red Cross in Washington and in New York. For more information - val.chmela@hknc.org or 516-944-8900, ext. 410 (V/TTY).

 

Many websites can alert you via email, pagers and cell phones. Check out the Weather Channel at www.weather.com or www.emergencyemail.org

 

Other Disaster Preparedness for People with Disabilities http://www.jik.com/disaster.html or the EPI Guide for Emergency Managers http://www.nod.org/index.cfm?

 

Some areas offer Reverse 9-1-1 to process many warning

notifications at once. Check with your local 9-1-1 to see if

TTYs, VRS and CapTel can be used with the Reverse 9-1-1 recorded messages. (Some excerpts taken from HKNC SW Newsletter, Vol. 1 Spring 2006) and (some information taken from CEPIN, Volume 1, Issue 3. Fact sheets may be downloaded at www.cepintdi.org click on National Resources).

 

UPCOMING EVENTS

 

April 7, 2007 - Indianapolis, IN and May 19, 2007 - Chicago, IL

ASL Expo Trade Show, admission is FREE. To find out what other cities are hosting this expo and more information visit www.aslexpo.com   

 

May 8 – 10, 2007 the Deaf & Hard of Hearing in Government 2007 National Training Conference, (NTC) will take place in Washington, D.C. for more information go to http://www.dhhig.org/ntc/2007

 

June 17 – 24, 2007 the Deaf-Blind Explorers are going to Alaska.  For more information and details contact them at their e-mail DeafBlindTravel@aol.com

 

June 30 – July 7, 2007 the American Council of the Blind, (ACB) will be holding their convention in Minneapolis, MN. Check out www.acb.org for more information.

 

July 27 - 29, 2007 the 8th International CHARGE Conference will be in Costa Mesa, California. Contact the CHARGE Syndrome Foundation at 800-442-7604 or visit their website - www.chargesyndrome.org/conference-2007.asp

 

September 25 – 30, 2007 the Deafblind International 14th World Conference will be held in Perth Western Australia. More information and details are at their website: www.dbiconference2007.asn.au    

 

The HKNC National Training Team (NTT) conducts numerous one-week training seminars for professionals. Most are conducted at the Center in Sands Point, NY. For the 2007 NTT Seminar schedule, check www.hknc.org or email: doris.plansker@hknc.org

 

RESOURCES

 

The just released monograph “Touch of Home…Road to Realizing a Vision” by Betsy Hodge & Monika McJannet-Werner (Monika is HKNC’s Southeast Regional Rep). This publication describes a model for the development of a program to successfully support DeafBlind individuals to participate in the dynamics of a community. You can download this publication and find out more information at HKNC’s website www.hknc.org    

 

For “A Guide to the Development and Implementation of Services to Persons who are DeafBlind and Live in Rural Areas”, check out http://www.mcpo.org/pdf/LinkByLink.pdf  

 

Want to learn more about Support Service Providers, (SSP) check out these websites:  http://www.dblink.org/lib/topics/what-role.htm  

or www.seattledbsc.org

 

For information on questions families ask about guardianship go to the Transition Services Project (TSP) at, http://www.cenmi.org/uploaded/2005/OCT/2175220949_

GuardianQA.pdf

 

OcuSource www.ocusource.com is loaded with resources for individuals and caregivers of those with low vision.

 

The National Family Association for the Deaf-Blind (NFADB) is a non-profit, volunteer-based family association and the largest national network focusing on issues surrounding Deaf-blindness, www.nfadb.org

 

New website for individuals with Macular Degeneration is at www.myeyehealth.org or call 866-702-3937 for information on treatment and resources.

 

      Lighthouse International www.lighthouse.org is a leading resource worldwide on vision impairment and vision rehabilitation.

 

The American Foundation for the Blind www.afb.org is a very informative resource for blindness.

 

Silent Call Communications is a good resource for assistive alerting devices; they are located in Waterford, MI. Visit their website at www.silentcall.com or call 248-673-7353 (V/TTY) or 800-572-5227 (V/TTY).

 

Interested in VISION SIMULATION PHOTOS, check out these websites. “Through Our Eyes”   http://www.mdsupport.org/thrueyesRP.html

http://www.mdsupport.org/thrueyes.html         

      

 Pictures of Eye Conditions   

 http://www.nei.nih.gov/photo/   

 http://www.visionconnection.org/                                       

 http://my-vision-simulator.com/   

 

To purchase vision simulators, www.LowVisionSimulators.com    

 

For information on etiologies, go to http://www.sense.org.uk/

 

Any individuals who are in need of hearing aids with limited financial resources should contact “So the World May Hear” program at www.sotheworldmayhear.org or call 800-648-4327 (V).

 

Also the Lions are making available low-cost, quality hearing aids to people who could not otherwise afford them - contact www.lionsear.org or call 630-571-5466, ext. 615, (V).

 

All travelers before you take your next flight find out what to or not to pack. For a complete list go to:

http://www.tsa.gov/press/happenings/threat-change- passenger_ guidance.shtm. For individuals with a disability go to: www.disabilityinfo.gov/digov- public/public/DisplayPage.do? parentFolderID=129 to find out the rules and regulations when you travel on an airline, train, or bus.

 

Show your support for the Foundation Fighting Blindness and their mission to find treatments and cures for blinding retinal degenerative diseases through your purchase of a Braille, glow in the dark wristband. The wristband says "Our Vision is Clear" in Braille lettering. To find out how to purchase one go to their website at http://fightblindness.org/wristbands/

 

For a very detailed and technical explanation of how our laws are made, check out, “How Our Laws Are Madehttp://thomas.loc.gov/home/lawsmade.toc.html 

 

Equip for Equality has developed a series of fact sheets that provide concise and accurate legal rights information in an easy-to-understand format. To view these fact sheets go to www.equipforequality.org/resourcecenter/ or call 800-537-2632 (V).

 

The Hearing Loss Association of America, formerly Self Help for Hard of Hearing People (SHHH), is the nation’s largest advocacy organization for people with hearing loss. For more details, go to: www.hearingloss.org 

 

LISTSERV LISTS

CataList, is a catalog of LISTSERV lists! From this list you can browse any of the 61,554 public LISTSERV lists on the Internet, search for mailing lists of interest, and get information about LISTSERV host sites. Also it will inform you how to subscribe to the LISTSERV of your interest. To start a search click on Search for a mailing list of interest, enter your topic in the Look For (box), for example Usher Syndrome, and check List Name and List Title, then click Start Search. More information and details are at: www.lsoft.com/catalist.html  

PSDBC is a LISTSERV for Professionals Serving Deaf-Blind Consumers. To subscribe send an e-mail to LISTSERV@TR.WOU.EDU with the command (paste it!) After you have joined, if you would like to look back at previous months' dialogue, go to our archival website at: http://www.tr.wou.edu/archives/psdbc.html. Recent discussions have been focused on SSP vs. PCA services.

 

Visit http://www.tr.wou.edu/archives/ and you can browse the online archives of the mailing lists, to which you are subscribed. Note: Some of the lists are private and subscriptions are by approval of the List Owner.  

 

FOR PARENTS, STUDENTS, AND EDUCATORS there are many websites that are informative and include a variety of information. 

Such as, Individual Education Program (IEP) questions at, http://nclid.unco.edu/joomla/index.php?option=com_content&task=view&id=1084&Itemid=2. National Center on Secondary Education and Transition at http://www.ncset.org/. You can search, copy and cite state and federal special education regulations at http://www.rrfcnetwork.org/nspd. National Center for Learning Disabilities has an interactive Parent Center at http://www.ncld.org/parents. There is a free manual for parents of children with CHARGE syndrome titled “A Management Manual for Parents” for more information and details: http://www.chargesyndrome.org/resources-manual.asp. To find an appropriate toy for a child with specials needs check out www.ableplay.org/  

The Hadley School for the Blind has introduced OASIS a new feature that will speed up the communication process between students and Student Services to register online students can go to http://www.hadley.edu/

 

The Washington Center for Internships and Academic Seminars (TWC) offers students challenging opportunities to work and learn in Washington, D.C. More information is at: http://www.twc.edu/default.shtml   

 

Midwest Center for Postsecondary Outreach (MCPO), has developed an overview of the various speech-to-text service options available in postsecondary environments to students who are deaf or hard-of hearing, for more information check out - www.mcpo.org  

 

A CD ROM titled “CONTACT- Understanding of Specific Characteristics to Build Up Reciprocal Interaction with Congenital Deafblind Persons” has been released. It provides detailed information on the process of interaction between the Deafblind child and his/her educator. It can be purchased for $40.00 by making a check payable to Mr. Joe Franken, 4619 Spyglass Drive, Dallas, TX 75287.

 

“Usher Syndrome – Understanding Usher Syndrome: Information for School Counselors” is a booklet that is available to view in PDF format at HKNC’s website www.hknc.org/index.html and can also be purchased for $15.00 through HKNC, 141 Middle Neck Road, Sands Point, NY 11050.

 

There is available a resource guide for teens and young adults that promotes independent physical activity. It outlines a step-by-step process for choosing and participating in sports and other physical activities outside of the school arena. The guide is: “Going Places: Transition Guidelines for Community-Based Physical Activities for Students who have Visual Impairments, Blindness, or Deafblindness.” The cost is Large Print/CD: Item # 7-13090-00 for $68.00, Braille/CD: Item # 5-13090-00 for $68.00 and the Replacement Item: Braille Worksheet Packet: Item # 5-13091-00 for $20.00. You can order these at www.aph.org (Source: Beth Jordan, HKNC Great Plains Regional Representative)

 

INFORMATION ON CLASSES AND TRAINING

       

      The New Personnel Preparation Project Recruiting for Students for Spring 2007 and Fall 2007 in New York City - Hunter College Master's Degree Program in Severe Disabilities including Deafblindness is recruiting for new full and part-time students.

 

      Applicants need a 2.8 GPA from an accredited undergraduate program and can enter with or without previous certifications. Graduates will be eligible for permanent certification in Childhood Education and Childhood Special Education with an annotation in severe disabilities. Tuition waivers and student stipends are available for students admitted into the program. The length of the program is between 1 and 1/2 and 2 and 1/2 years, depending on prior qualifications. For further information, contact Dr. Rosanne K. Silberman at rsilberm@hunter.cuny.edu or call 212-772-4740.

The RRTC on Blindness and Low Vision at Mississippi State University is seeking applicants for the Vision Specialist in Vocational Rehabilitation graduate certificate program, “Training in Blindness and Visual Impairment”, being held March 26 - May 25, 2007. The purpose of the program is to provide vocational rehabilitation (VR) counselors and graduate students in VR programs with the expertise to address issues specific to vision impairments. The registration deadline is December 15, 2006. Interested applicants can obtain additional information by contacting Mr. BT Kimbrough, RRTC Training Director at 662-325-7824 or the web-site http://www.blind.msstate.edu/Vspecialist1.html 

 

The Rehabilitation Research and Training Center (RRTC) on Blindness and Low Vision at Mississippi State University will offer this spring an online continuing education course for rehabilitation professionals, entitled “Successful Placement of the Older Consumer with Visual Impairment” for further information and details go to www.blind.msstate.edu/OlderPlacementCourse.html

 

Northwest Vista College is the first college to offer an Online Braille Textbook Transcriber Certificate Program. More details can be found at http://www.accd.edu/nvc/areas/braille

 

Partners in Policymaking has five online courses for anyone who would like to increase their knowledge and understanding of best practices in the disability field and how to communicate with their elected officials. Further information and details are at: www.partnersinpolicymaking.com

 

“Safety in the Home” is a course being offered by Hadley School for the Blind. It will provide essential information to protect you, your family and your home during an unforeseen emergency. This course is FREE, and is available in large print, braille, on audiocassette, and online. To register call 800-526-9909 or you can register at www.hadley.edu

 

For the January 2007 term, Project SEIM, Sensory Impaired Early Intervention Masters Program has openings for new students interested in getting a masters degree in Early Intervention Deafblindness. Coursework will be done at Utah State University in Logan, Utah and out of state students will receive in state tuition rates. All students accepted into the program are eligible for financial support. For further information, contact Linda Alsop 435-797-5598 or at lalsop@cc.usu.edu 

 

Register today for the Family Center on Technology & Disabilities Online Assistive Technology Institute. It’s FREE! Discuss AT funding and building statewide AT advocacy with colleagues across the country. The faculty of AT experts and institute participants will share successful strategies and useful resources. They’ll answer your questions and help you brainstorm approaches to the challenges you face. To register go to: http://www.fctd.info/winterinstitute/2006/winter_institute_2006_info.php or e-mail fctd@aed.org. Website: www.fctd.info

 

INFORMATION ON LARGE PRINT ITEMS, books, newspapers, and magazines

 

Bookshare.org dramatically increases the accessibility of books for people with visual or other print disabilities. There are currently over 29,500 books available. Check out www.bookshare.org  

 

To get your favorite movie scripts in text format for free go to www.WeeklyScript.com  

 

  Huge Print Press will custom enlarge everything from bibles to textbooks to novels to cookbooks. The books are bound in a convenient “8.5x11” format and you select the font size. For more details call 866-484-3774 (V) or go to: www.hugeprint.com

 

The National Federation of the Blind now enables those who cannot read conventional print to have access to all content offered on NFB-NEWSLINE, when traveling throughout the United States twenty-four hours a day, seven days a week. Individuals can now access daily newspapers and magazines. For more information visit     

www.nfb.org click Products & Technology, and then click Audio Newspaper Service.

 

EMPLOYMENT, UNEMPLOYMENT AND DISABILITY

 

Check out these resource websites concerning issues about employment, unemployment and disability. The RedBook is a general reference source about Social Security Disability Insurance and the Supplemental Security Income Programs for individuals with disabilities. You can order free online “A Summary Guide to Employment Supports for Individuals with Disabilities” at  http://www.socialsecurity.gov/disabilityresearch/redbook.htm

 

WorkSupport.com is a good resource for materials and information on job employment and job retention.     

http://www.worksupport.com/resources/index.cfm                                          

 

A good resource for job accommodations and employment programs is www.DisabilityInfo.gov   

   

OSERS latest version of the "Disability Employment 101" document and companion brochure "Disability 101 for Your  

Business” can be found at:  http://www.ed.gov/about/offices/list/osers/products/employmentguide/index.html  

 

The U.S. Equal Employment Opportunity Commission has released a new publication “Employment Rights Of People With Hearing Loss” to view go to: www.eeoc.gov/facts/deafness.html                              

 

Practical Accommodation and Compliance Series Guides are at http://www.jan.wvu.edu/media/

 

 Accessible IRS forms are available, including braille, text formats and some talking forms at:     

     http://www.irs.gov/formspubs/article/0,,id=96151,00.html  

   

FOR THE AGING here are some excellent resources:

 

“See For Yourself: Vision and Older Adults” is a FREE program that informs adults about changes that affect their eyes as they age. To order your free program go to: www.nei.nih.gov                                    

 

For information on Deaf Senior Housing Projects go to: www.deafseniorhousing.com  

 

United Cerebral Palsy released a consumer guide “Navigating the Medicare Part D Prescription Drug Coverage Program: A Guide for People with Disabilities, Benefits Counselors, Disability Organizations and Others On Ensuring Adequate and Appropriate Access to Prescription Drugs”. You can obtain free copies at www.ucp.org   

 

DID YOU KNOW ???

 

      HKNC’s North Central Regional Office has disconnected the telephone line 309-755-0021. All our calls are being taken by 309-755-0018 (V/TTY/VP). Please update your records.

 

      HKNC’s Training Center in New York has exciting news. The Center now has a total of 38 VP-200s. Soon, there will be a VP-200 phone booth that will be put in the Training Center’s lobby.

 

The CHARGE Syndrome Foundation, Inc. has moved their executive office to the campus of HKNC in Sands Point, NY. They can be contacted at: www.chargesyndrome.org  

 

On October 1, 2006, the National Technical Assistance Consortium for Children and Young Adults Who are Deaf-Blind, (NTAC) and DB-LINK are now under one grant - the National Consortium on Deaf-Blindness (NCDB).

 

A Deaf-blind consumer can get their own Handicapped Parking Permit, even if they don’t drive. This parking permit can be used in any car you ride in. Then your SSP or any another person can park in the Handicapped Reserved space when you are with them. This is a law under the ADA, ask your eye doctor about getting a handicapped placard. 

 

The Department of Education's National Institute of Disability Rehabilitation and Research has awarded a grant to NPR and WGBH's National Center for Accessible Media (NCAM) to develop accessible radio technology for people who are deaf, hard of hearing, blind or visually impaired. The Accessible Digital Radio Broadcast Services grant, in the amount of $150,000 for the first year, will help fund an anticipated three-year research and development project to prototype, field test and assess the cutting-edge radio technologies to serve the needs of people with sensory disabilities. 

 

After three years Legislative Bill H. Con. Res. 235 finally passed!! The Bill states that it is the sense of the Congress that each State should require any candidate for a driver's license in such State to demonstrate, as a condition of obtaining a driver's license, an ability to associate the use of the white cane and guide dog with visually impaired individuals and to exercise greatly increased caution when driving in proximity to a potentially visually impaired individual.

 

Howe Press which markets Perkins Braillers has offered a 10 percent discount to any member of American Council of the Blind (ACB), when they purchase any of their braillers. Be sure to identify yourself as an (ACB) member. They can be contacted at 877-473-7546 or www.perkinsstore.org (Excerpts taken from The Braille Forum, September 2006).

 

Atlanta Brailler Repair & Service can repair all makes and models. Also they have nationwide service and delivery, for more information go to www.atlantabraillerrepair.com or call 800-726-7406.

 

The American Foundation for the Blind (AFB) has a monthly online publication, AFB eNews, that keeps you update on AFB’s activities visit their website at: http://www.afb.org/enews.asp

      "AADB on the Move: No Deaf-blind Left Behind" was the theme of their 2006 successful conference in Baltimore, MD. Over 800 people came to the conference to learn about new services and programs, attend workshops, exhibits, and forums, receive training in advocacy and legislative work, and meet and greet old and new friends. AADB's 2008 conference will be "somewhere" in Tennessee. Stay tuned for more information and become an AADB member at: www.aadb.org. AADB is actively seeking news of current events to post on their website. Also they now have a free AADB eNews newsletter you can find more details at their website, look under Activities for the eNews and news articles information.

The Louis Braille commemorative coin which will go on sale in 2009 will emphasize Braille literacy by featuring Louis Braille’s image and raised dots that spell out “Brl”, the Braille contraction for the word “Braille.” In addition, all sales of the Braille commemorative coin will include a surcharge of $10 per coin, which will be distributed to the National Federation of the Blind to promote Braille literacy. This will be the first coin ever minted by the United States Treasury with a Braille symbol. To learn more about the Louis Braille commemorative coin contact the NFB at 410-659-9314, or visit www.nfb.org 

 

HKNC Deaf-Blind Awareness Week - 2006

 

DEAF-BLIND INDIVIDUALS MAKE A DIFFERENCE IN THE WORKPLACE

 

Sands Point, NY The Helen Keller National Center (HKNC) is the national program which provides diagnostic evaluation, short-term comprehensive vocational rehabilitation and assistance with jobs and residential placement exclusively for Americans who are Deaf-blind. Local services and training are offered nationwide to these individuals, their families and professionals in the field.

 

Many were a part of Helen Keller’s vision by participating with agencies and organizations worldwide in the Helen Keller National Center’s 2006 Deaf-Blind Awareness Campaign, which was during JUNE 25 - JULY 1, 2006. This year’s focus was ACHIEVING EXCEPTIONAL CAREERS. Since 1969, when HKNC opened its doors, much progress has been made in providing vocational rehabilitation training, leading to an increased number of career opportunities available to people who are Deaf-blind. More and more companies are recognizing and benefiting from the skills and talents of valued Deaf-blind workers. To join this growing number of employers, contact the Helen Keller National Center at 516-944-8900, ext. 254 (V) or e-mail development@hknc.org.                

 

Originally proclaimed by Congressional resolutions and Presidential signature in 1985, awareness activities and events featuring information about significant vision AND hearing loss, or Deaf-blindness, now occur throughout the year. To prepare for 2007 the North Central regional states of IL, IN, MI, MN, OH and WI are encouraged to plan state and local activities to occur during the week of June 24 – 30, 2007, the month of Helen Keller’s birthday.

 

A sample proclamation, radio public service script, and a list of suggested activities, along with the 2007 poster, (to be developed and distributed at a future date) and samples of press releases are available at no cost by contacting the Director of Development,  development@hknc.org or by contacting HKNC in New York:

Helen Keller National Center, 141 Middle Neck Road, Sands Point, NY, 11050-1218 or by calling 516-944-8900, ext. 254 (V); 516-944-8637 (TTY); 516-767-1738 (Fax)

 

If you know someone who would like to receive this newsletter and did not, please provide their information below. You may fold this page in half so that our address shows. Then staple or tape, and mail to our office, or email HKNCROA@aol.com

 

This newsletter will be posted on our HKNC website, along with other regional newsletters www.hknc.org

 

Name:

_________________________________________________

Address:

_________________________________________________

 

If you do not wish to receive this newsletter in the future or if you would prefer to receive it electronically, please indicate below, and mail to our office or email HKNCROA@aol.com

 

□ Please do not include me in the next newsletter mailing

Please send me this newsletter in electronic format.

My e-mail address is:

_________________________________________________

 

If you would like to be featured in a “Consumer Spotlight” segment or if you have any comments, updates or information you would like to share, please direct correspondence to:

 

Helen Keller National Center

Catharine Papish, Administrative Assistant

485 Avenue of the Cities, Suite 5                                            

East Moline, IL 61244-4040

HKNCROA@aol.com

 

 

HELEN KELLER NATIONAL CENTER

NORTH CENTRAL REGION

485 AVENUE OF THE CITIES, SUITE 5

EAST MOLINE, IL 61244-4040

 

 

 

For office use only:      ID number:            New    Update       Date

 

 

Rcode:                           

Notes

D.Date                                                            Entered by:

 

D.C.                                                                                                                                                                                        Date Entered:

 

HKNC National Registry of Persons Who are Deaf-Blind

ShortForm/Update

 

*This form may be returned to the North Central Office in a stamped envelope to:             

 

Helen Keller National Center

485 Avenue of the Cities, Suite 5

East Moline, IL 61244-4040

 

FORM MAY BE FAXED to the North Central Regional Office at 309- 755-0025 or completed online at www.hknc.org

 

      The purpose of the Registry is to provide basic information about individuals with Deaf-blindness in the United States. This information is to be used as a census, to identify the needs of persons with Deaf-blindness, as a planning tool and for research purposes. All identifying information is confidential and written consent of the individual or guardian is required before it will be shared outside HKNC.

 

 

 

INFORMATION ABOUT INDIVIDUAL WHO IS DEAF-BLIND

 

 Today’s date:

Last Name:                                                  First Name: 

 

Middle Name:                                                 Maiden Name:

 

Mailing Address: 

 

City:                  County:         State/Territory:           Zip: 

 

Telephone #                              Voice   TTY                          E-mail: 

 

 

Date of birth:                               Male                     Female

         

Cause of deafness: 

 

Cause of blindness:

 

Syndrome/other conditions: 

 

 

 

 

This form completed by:

 

Relationship to individual listed above: 

 

 

Last Name:                                              First Name: 

 

 

Mailing Address: 

 

 

City:                                 County:            State/Terr:             Zip: 

 

 

Telephone #                                Voice   TTY                          E-mail: