THIS IS THE "USHER SYNDROME RESOURCES" PAGE IN "USHER SYNDROME"

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AVAILABLE FOR PURCHASE:

BOOKS - Understanding Usher Syndrome: An Introduction for School Counselors

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BROCHURE:

Usher syndrome brochure - PDF document

NATIONAL INFORMATION CLEARINGHOUSE  - DB-LINK

Selected Topics - Usher syndrome

RESEARCH

National Center for the Study and Treatment of Usher Syndrome

Protein Tied to Usher Syndrome May Be Hearing’s ‘Missing Link’

SUPPORT FORUMS:

Listserv: Usher Syndrome Mailing List is an internet forum for people with Usher, their parents, friends, spouses, and service providers. To subscribe to this list, send the following in the body of an e-mail message to listserv@tr.wou.edu:

SUBSCRIBE USHERS (your firstname and lastname)

For assistance: contact Randall Pope at (301) 589-5454; TTY: (301) 589-5454

NEW Listserv: "The Mothers with Usher Syndrome" is a new listserv for moms who have Usher syndrome.

PERSONAL STORIES

Nuccio Receives NTID Distinguished Alum Award

Blindness and Deafness Can't Keep Her From Her Patients

National Center for the Study and Treatment of Usher Syndrome - Patient Profiles

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