THIS IS THE "USHER SYNDROME 'UNDERSTANDING USHER SYNDROME: AN INTRODUCTION FOR SCHOOL COUNSELORS" PAGE IN "HKNC PUBLICATIONS" 

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This book introduces the reader to basic information about Usher syndrome, stressing developmental and emotional issues that commonly arise for students and parents. It includes basic practices for schools and sections on the effects on communication and career planning. Personal accounts by adults with Usher syndrome and parents are included. A reference section includes program resources and recommended readings.

Cost: $15.00 each, shipping and handling included.

Table of Contents:

Preface

Part I: Understanding Usher Syndrome

What do I need to know about…

          Types of Usher syndrome

          Retinitis Pigmentosa

          Identification and diagnosis of Usher syndrome

          Personal and counseling issues for children with Usher syndrome and their parents

          Lifespan chart

          Communication issues

          The effects of Usher syndrome in the educational setting

          Career planning

          Cochlear implants

          Orientation and mobility

          Specialists who can help people dealing with Usher syndrome

          Technology

Part II: Living with Usher syndrome

“Dealing with Usher Syndrome” by Harry C. Anderson

“Meeting Challenges Head On” by Kathie Anderson

“Journey to Understanding” by Jeffrey Bohrman

“One Day at a Time” by Patti Lago-Avery

“Growing Up with Usher Syndrome” by Arthur Roehrig

“If I Can Do It, So Can You” by Heather Schoenwald

“How Usher Syndrome Impacted My Life” by Lisa Sudman

“Parenting a Child with Usher Syndrome Type I” by Joanne Hacker

“A Parent’s Perspective on Usher Syndrome Type II” by Barbara Jones

Part III: Learning More about Usher Syndrome

Going on: Suggested Readings

Going on: Selected Resources

Part IV: Appendices

A.   Definitions of Deaf-Blindness

B.   Living with Deaf-Blindness

“In Search of My Identity as a Person who is Deaf-Blind” by Rebecca Baxter

C.   Inheriting Genes for Usher Syndrome

To order this book, contact:

Helen Keller National Center

141 Middle Neck Rd.

Sands Point, NY 11050

Attn: Information Services

Please include payment  of $15 in the form of a check or money order ONLY, payable to “HKNC.”

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E-mail: hkncinfo@hknc.org

Phone: (516) 944-8900 Ext. 253 (Voice/TTY)

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